Since I started my periods at age 13 I suffered from painful periods. The pain got gradually worse over the years. I tried every possible type of contraceptive to help with the pain including Depo-Provera injections and the Mirena Coil but nothing helped much. I had numerous scans and laparoscopies but other than a few lesions and small spots of endometriosis there was nothing to explain the pain I was in.
From age 30-37 the pain gradually worsened to the point that I had to go to casualty pretty regularly for morphine injections as it was the only form of pain relief that actually did relieve the pain. I have to say as well the nurses were often very unsympathetic, in-fact they thought I was exaggerating how bad it was…but I was climbing the walls. It was effecting my work and I was becoming depressed because it was so debilitating.
My partner (who I have been with now for 5 years) told me to see a Private Specialist and I booked a consultation. I had a laparoscopy and was told that my uterus was larger than normal for my age. While the consultant couldn’t confirm for sure he said it was quite possible that I had Adenomyosis. Adenomyosis is a condition in which the inner lining of the uterus (the endometrium) breaks through the muscle wall of the uterus (the myometrium). It can cause menstrual cramps, lower abdominal pressure, and bloating before menstrual periods and can result in heavy periods.
It made sense to me as it was the only possible answer left to explain all the pain, although my periods were actually very light and not heavy at all. I knew then that I would have to finally contemplate a hysterectomy and I was terrified.
I had a total hysterectomy just after my 40th birthday and I am now pain free and living a normal life. I was home in a few days and the worst of it was a bit of soreness. I felt instantly like a new woman and was fortunate enough not to notice any menopausal symptoms. I started on HRT a few weeks later which seemed to suit me but when I went back with a repeat prescription I was given a different brand of the same HRT. After a few days of taking it my joints really started to ache. I persevered for a few weeks but I could barely move by then and getting out of bed in the morning was a difficult task so I went back to my GP. I was given a different HRT and felt wonderful again after a few days.
Everyone is different but I put off having a hysterectomy for years. First and foremost in case I wanted to try and have a baby but also because I was so scared of the consequences of early menopause. Now my only regret is that I didn’t do it years ago!
When the biopsies came back after the op it was confirmed that I had ‘extensive’ Adenomyosis which I was told must have been causing me a great deal of pain :-O
To all you ladies suffering out there, my story has a very happy ending…….I hope yours does to.
Now available on our online store and all other online book store’s. In My Own Words: Women’s Experience of Hysterectomy is full of many other real-life stories from women the world over.
Other people’s stories help women feel less isolated. They show that they aren’t going mad, missing the point or stupid.