Not all are good stories – Susan’s Story

I was told that if I had a Hysterectomy my health would improve and I would never look back, well I had it on the 20th January, had problems in recovery and spent 4 1/2 hours there.

I was told at 7am the next morning that I needed to vacate my bed as it was needed and to be sent home. Home I went, all ok to start but by Sunday night I was in agony. A Doctor attended me and told me if I was in pain again to call him this was 1am; at 6am on the Monday morning the pain was so bad an ambulance was called for.

They took me to A&E where I was for 6 hours before being transferred back to the Maternity Hospital.

I was in agony and placed in a room to either sit on a chair or lay on an examination bed, neither which were comfortable. I was finally given a bed, and sent for an ultra sound this appeared nornmal.  The nurse came onto the ward with peppermint tea and told me to drink because all I had was chronic wind…

I was sick, temperature, dehydrated and in worse pain than giving birth. the next day I was sent for a CT scan and it appeared that my bowel had been perforated and peritonitis had set in.

Another operation that night, a stay in intensive care and high dependancy before 7 days on the ward. thinking the worse was over I was mistaken when the catheter was removed I had a popping feeling and gushing of urine. It now appears I have a fistula, 2cms big to be precise. All I got from the hospital was i had consented for the operation…. yes I had, but when I was told there may be bowel or bladder problems I automatically assumed it was bruising, not something that could take my life.

I have now had 4 operations and having my 5th operation next week to repair the VVF so hopefully after 10 weeks of a catheter this can be removed in 3 weeks….

It has literally destroyed my life, my self confidence and I know in my heart that if I was told the worse case scenerio I would not have consented and carried on living with the pain and discomfort of the fibriod and mild endometriosis….

Apparently I am special, Ithink its the hospital way of making light of the situation as it happens to 1-600 and I happened to be the 1….

Getting over the hysterectomy has been a piece of cake, it’s just all the risks I am now dealing with, I wish with all my heart the surgeon was frank and honest with me.


in my own words book coverNow available on our online store and all other online book store’s. In My Own Words: Women’s Experience of Hysterectomy is full of many other real-life stories from women the world over.

Other people’s stories help women feel less isolated. They show that they aren’t going mad, missing the point or stupid.

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