Lynch Syndrome Risk Reducing Surgery – Lisa’s Story

Hi, I’m very new to all this so don’t really know where to start! I have a condition called Lynch Syndrome or HNPCC. My wonderful mother died 10 years ago at the age of 52 from Endometrial cancer. She previously had Bowel cancer too and at the time a link was not made but we now know she must have has Lynch syndrome too.

Lynch syndrome sufferers have an 80% chance of developing Bowel cancer, a 60% chance of developing Endometrial Cancer and 10% chance of developing Ovarian cancer, plus other cancers too.

Which is what has lead me to this site. In a few weeks I will be having a Total Hysterectomy and Bilateral Salpingo Oophorectomy (Uterus, cervix, fallopian tubes and ovaries removed).

Has anyone else had this surgery to reduce risks of getting cancer? Especially at a young age, I’m 37. I have never had any problems with my periods or my fertility so to my friends it seems a bit drastic!


in my own words book coverNow available on our online store and all other online book store’s. In My Own Words: Women’s Experience of Hysterectomy is full of many other real-life stories from women the world over.

Other people’s stories help women feel less isolated. They show that they aren’t going mad, missing the point or stupid.

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